LAM Treatment Alliance Fast Tracking Treatment Research

Support Systems

Find another patient to speak with, learn about mental health referrals in your area, join a LAM support group or read inspiring stories from other women living with LAM. Their words may provide you with comfort and strength. Email: patientstories@lamtreatmentalliance.org with your story if you would like for us to post it here!

Rare Disease Advocacy Organizations

National Organization for Rare Disorders http://www.rarediseases.org

Patient Stories

Newly married and starting out on her career, Mara Rezo thought she had the world at her feet. However, at 25 a diagnosis of LAM saw the breakdown of her marriage and shattered her dreams of motherhood. Now working part-time and keeping as fit as she can with yoga, Mara is doing her best to manage the ill effects of the disease.

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Patient Support Groups

AELAM: Asociación Española de Linfangioleiomiomatosis (Spain) http://www.aelam.org/

ARDS Foundation http://www.ardsfoundationil.com

Associação LAM Do Brasil (Brazil) http://www.alambra.org.br

Association FLAM - France Lymphangioléiomyomatose (France) http://www.orpha.net/nestasso/FLAM

Associazione Italiana Linfangioleiomiomatosi http://www.ailam.it

The Carol and James Herscot Center for Children and Adults with TSC at Massachusetts General Hospital http://www.massgeneral.org/tsc

J-LAM (Japan) http://www.j-lam.org

Klinik für Pneumologie (Switzerland) http://www.pneumologie.unispital.ch/Seiten/default.aspx

LAM Action (UK) http://www.lamaction.org

LAM Australasia Research Alliance (LARA) http://www.lara.org.au

LAM Canada http://www.lamcanada.org

LAM Foundation (US) http://thelamfoundation.org

LAM Selbsthilfe (Germany) http://lam-info.de

Living with TSC http://www.massgeneral.org/livingwithtsc/affects/lung2.htm

National Home Oxygen Patients Association http://www.homeoxygen.org

New Zealand LAM Charitable Trust http://www.lam.org.nz

Tuberous Sclerosis Alliance http://www.tsalliance.org

LAM Treatment Alliance

E-mail: info@lamtreatmentalliance.org

Address: 64 Church Street, 2nd floor; Cambridge, MA 02138; USA

Phone: +1 (617) 460-7339

Fax: +1 (617) 864-0614


Sponsors, Partners and Supporters